I know people think they are being really helpful when they make suggestions, but I wish they would take a step back and ask first.
I have lived with chronic fatigue for 18 years, and pain longer than that. My hair loss started over 20 years ago, and I can’t conceive of what it’s like to not wake several times a night, or to feel refreshed in the morning. Whatever they’re going to say, I’ve likely tried it, or researched it, or it’s obvious pseudo science that doesn’t merit research.
It would be one thing if people had knowledge or expertise, but every time it’s something they’ve seen on Facebook, or something they think helped them with a very minor short-term issue.
Sometimes I’m more forgiving because people don’t know my story, but when they know this has been almost my entire adult life, and they tell me to buy a supplement or look into grounding mats (seriously), it really annoys me.
This isn’t about health professionals looking at my case and running tests or trying new treatments. It’s the people who see me at breaking point and ask if I’ve tried a pillow spray.
I don’t have your problem, but a problem of my own (detailed in my own thread). And the sheer volume of idiotic advice I get from people on it is amazing to me.
Yes, please tell me about this cure to a problem I’ve had literally all my life and have known about and had to manage for about 30 years.
I know people think they are being really helpful when they make suggestions, but I wish they would take a step back and ask first.
I have lived with chronic fatigue for 18 years, and pain longer than that. My hair loss started over 20 years ago, and I can’t conceive of what it’s like to not wake several times a night, or to feel refreshed in the morning. Whatever they’re going to say, I’ve likely tried it, or researched it, or it’s obvious pseudo science that doesn’t merit research.
It would be one thing if people had knowledge or expertise, but every time it’s something they’ve seen on Facebook, or something they think helped them with a very minor short-term issue.
Sometimes I’m more forgiving because people don’t know my story, but when they know this has been almost my entire adult life, and they tell me to buy a supplement or look into grounding mats (seriously), it really annoys me.
This isn’t about health professionals looking at my case and running tests or trying new treatments. It’s the people who see me at breaking point and ask if I’ve tried a pillow spray.
Preach it, sister!
I don’t have your problem, but a problem of my own (detailed in my own thread). And the sheer volume of idiotic advice I get from people on it is amazing to me.
Yes, please tell me about this cure to a problem I’ve had literally all my life and have known about and had to manage for about 30 years.