Yep I sure do look normal! Would be nice if I had more energy than negative five. Oh? You have energy waking up so I’m lying about how sleep doesn’t refresh? Thanks! Yeah my doctor knows and is baffled but my insurance only covers so many tests! Guess I’m just exhausted until I die! Oh I’m still doing stuff? I HAVE TO TO EXIST.
Yep. There is an expectation from others that you have to constantly “perform” disability in order for it to be valid.
I can’t just not do things; they need doing. Sometimes those things are incredibly active, but I know I’ll pay for those later with a migraine or something else incapacitating. People don’t see that, or the calculations I have to make, they just see the active part.
Also, no amount of rest leads to recovery or feeling replenished, so it doesn’t make sense to me to neglect activity just to lie there in pain anyway.
It’s not cheap, like $1,000 plus periodic supplies but you can buy your own cpap. What I don’t know is how you can get it calibrated to your needs without seeing a sleep specialist.
Broke as fuck so that’s a no go. We can only do it if the insurance agrees. They agreed with husband because he was very very bad. I’m within normal human operating standards though so no go.
I clean it every morning because it’s just easier to do. Hose is one a week, checking filters and everything once a month. I found unscented dish soap and a toothbrush to scrub it all with. Fuck distilled water though, but the hard water is why I scrub every day.
Noted on cleaning frequency, I need to get better about it, esp the mask itself. Why fuck distilled water if you dont mind me asking? I use distilled water from Krogers and its been totally fine.
I pay for water from the city, and by the gods, I’ll use it!
More seriously, the distilled water needs to be purchased, brought inside, used, only for a lot to be wasted (since the machine never gets to dry out, he doesn’t sleep long enough) and since I am cleaning it every day, it doesn’t build up enough to be an issue.
Yep I sure do look normal! Would be nice if I had more energy than negative five. Oh? You have energy waking up so I’m lying about how sleep doesn’t refresh? Thanks! Yeah my doctor knows and is baffled but my insurance only covers so many tests! Guess I’m just exhausted until I die! Oh I’m still doing stuff? I HAVE TO TO EXIST.
Yep. There is an expectation from others that you have to constantly “perform” disability in order for it to be valid.
I can’t just not do things; they need doing. Sometimes those things are incredibly active, but I know I’ll pay for those later with a migraine or something else incapacitating. People don’t see that, or the calculations I have to make, they just see the active part.
Also, no amount of rest leads to recovery or feeling replenished, so it doesn’t make sense to me to neglect activity just to lie there in pain anyway.
Oh I feel you. Until I was diagnosed with sleep apnoea and put on Cpap my life was a hellscape of brain fog and exhaustion.
As far as we can tell, not enough sleep apnea to qualify for a machine (well, insurance won’t)
So I get to clean a cpap every morning for my husband but not use one! Ah well.
It’s not cheap, like $1,000 plus periodic supplies but you can buy your own cpap. What I don’t know is how you can get it calibrated to your needs without seeing a sleep specialist.
Broke as fuck so that’s a no go. We can only do it if the insurance agrees. They agreed with husband because he was very very bad. I’m within normal human operating standards though so no go.
This reminds me I should probably clean my cpap way more than I do…
You’re supposed to clean it? 😂
I clean it every morning because it’s just easier to do. Hose is one a week, checking filters and everything once a month. I found unscented dish soap and a toothbrush to scrub it all with. Fuck distilled water though, but the hard water is why I scrub every day.
Noted on cleaning frequency, I need to get better about it, esp the mask itself. Why fuck distilled water if you dont mind me asking? I use distilled water from Krogers and its been totally fine.
I pay for water from the city, and by the gods, I’ll use it!
More seriously, the distilled water needs to be purchased, brought inside, used, only for a lot to be wasted (since the machine never gets to dry out, he doesn’t sleep long enough) and since I am cleaning it every day, it doesn’t build up enough to be an issue.