I fucking hate these people so much.

  • VHS [he/him]@hexbear.net
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    19 hours ago

    the reality and pain of a subset of parents of children with autism who feel left out of much of the conversation around the condition.

    If anything they are always dominating the conversation despite being in the minority of autism cases. I understand it’s hard for them, but it’s not all about you and you’re talking over autistic adults who should be heard more.

    • Pentacat [he/him]@hexbear.net
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      18 hours ago

      They’re always talking over their children. Makes sense to ignore everyone who has lived experience with autism in favor of parents getting over the narcissistic wounding that came with having a kid that didn’t fit their fantasy.

        • Bishop_Owl [none/use name]@hexbear.net
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          11 hours ago

          Yeah I’d say it makes sense that people who are not narcissists would have less interest in creating genetic copies of themselves. I’d be willing to bet that if we had the option of cloning, it would be the more popular one.

    • Le_Wokisme [they/them, undecided]@hexbear.net
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      18 hours ago

      If anything they are always dominating the conversation despite being in the minority of autism cases. I understand it’s hard for them, but it’s not all about you and you’re talking over autistic adults who should be heard more.

      we had a nonverbal kid on the school bus one year and it was really cool of his parents and the school system to abuse that kid and by extension everyone else on the bus route on top of school starting too damn early in the morning. I’m not even sure if low-support adults are able to be effective advocates for the kids who have it the worst.

  • Dirt_Owl [comrade/them, they/them]@hexbear.net
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    22 hours ago

    Disgusting article

    We have moved from viewing disability through a purely medical lens — as something broken to be fixed — to a social lens that puts the onus on society to accommodate it.

    Ah yes, viewing disability as a problem to be fixed is very medical and rational and totally not based entirely on how your society is structured. I am very smart. It’s not like someone with disabilities could ever be anything but a burden no matter how much society accommodates them, right? Stephen Hawking? Who’s that?

    I consider myself squarely left of center.

    And yet, I think his remarks echo the reality and pain of a subset of parents of children with autism who feel left out of much of the conversation around the condition. Many advocacy groups focus so much on acceptance, inclusion and celebrating neurodiversity that it can feel as if they are avoiding uncomfortable truths about children like mine.

    Once again we see how poisoning political definitions has created a reality where people believe they can call themselves left while believing textbook harmful right-wing ideology.

    A Harvard-affiliated research center halted a panel on autism awareness in 2022, after students claimed that the panel’s language about treating autism was “toxic.” A student petition circulated on Change.org said that autism “is not an illness or disease and, most importantly, it is not inherently negative.”

    “I, a NYT writer, know more about Autism than the people who fucking research it for a living. I am very smart and believe in science.”

    I understand why Mr. Kennedy is such a polarizing figure. I did not support his cabinet appointment, and I don’t believe his platform will materially help families like mine. I think his policies are likely to harm. I don’t think he was the right person to make those comments. But I was struck by his willingness to speak frankly about the painful parts of my child’s life. I don’t care if my child ever pays taxes — but I do care that she may never have the opportunity to work or live independently. She did not destroy my family, but I live in constant fear for her safety. I care deeply about her quality of life, and the limited options ahead. I appreciated his acknowledgment, because most of the time, families like mine are invisible.

    The “center-leftist” siding with a literal Nazi and not realising the only reason he’s acknowledging them is to dehumanise them.

    My daughter turns 7 next month. I’ve long accepted that I may never hear her call me mom. I have grieved a million tiny deaths of the things I once assumed would be.

    And there we have it, it’s not about her child, it’s about her. She became a parent because she wanted a “normal child” and now selfishly feels entitled to a “normal child” so she can fit in with societal expectations. The child is a mark of social progression to her, like a car or a home. When you have a child you shouldn’t assume they will be anything you expected, they are an independent life that you are devoting yourself to ensuring their best life, not a pet.

    • quarrk [he/him]@hexbear.net
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      12 hours ago

      Ah yes, viewing disability as a problem to be fixed is very medical and rational and totally not based entirely on how your society is structured.

      100-com

    • Salem [he/him]@hexbear.net
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      13 hours ago

      That last paragraph you wrote reminded of that page from Flowers for Algernon, where the father defends his son Charlie from his mother.

      Matt - the father - loved his son and accepted him regardless of his disabilities.

      We should all be grateful we are not divorced from love, even if just as a concept of it, as Emily May is.

    • VILenin [he/him]@hexbear.net
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      19 hours ago

      We have moved from viewing disability through a purely medical lens — as something broken to be fixed — to a social lens that puts the onus on society to accommodate it.

      Neurotypical fascist whining about having to put up with the uppity autistics, example 99472772874.

      The worst part is this isn’t some fascist hardliner anomaly view, but the opinion of the average neurotypical. I could count the number of neurotypicals I’ve met who wouldn’t put the neurodiverse “burdens” on flights to El Salvador on one hand. When Trump starts doing just that, I’ll expect nothing short of celebration from the average person, whether or not they openly do so. Sick and diseased society

    • BelieveRevolt [he/him]@hexbear.net
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      21 hours ago

      I don’t care if my child ever pays taxes — but I do care that she may never have the opportunity to work or live independently. She did not destroy my family, but I live in constant fear for her safety. I care deeply about her quality of life, and the limited options ahead.

      ”Does the society we live in have a role in this? No, it’s my child who is wrong.”

  • Dessa [she/her]@hexbear.net
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    21 hours ago

    When Robert F. Kennedy Jr. said in a recent press briefing that autistic children will “never pay taxes,” “never hold a job,”

    How terrible that must be

    • dil [he/him, comrade/them]@hexbear.net
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      8 hours ago

      Yeah I only made it through the first few paragraphs before it became clear this was antivax propaganda.

      “I asked why she regressed, doctor says it’s common”

      “RFK Jr says…”

      “I got her vaccinated”

      Just right in a row.

      So gross.

  • BountifulEggnog [she/her]@hexbear.net
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    22 hours ago

    parents of children with autism who feel left out of much of the conversation around the condition.

    Oh yea, totally. The parents of autistic children are hardly ever heard from 🙄

    We have moved from viewing disability through a purely medical lens — as something broken to be fixed

    YOU CAN’T FIX IT!! god, why do people think if you invest enough tech points in an issue anything is possible? Just completely treat it as magic. I hate this attitude and it is so pervasive. You see people calling for conversion therapy with language like this too. Lots of disabilities are just- not fixable.

    There’s a resistance to parents who wish their children were less disabled

    I- I think everyone wishes your child was less disabled.