Summary

RFK Jr. is using private medical records to create a registry of people with autism in the United States.

The National Institutes of Health is helping to collect private medical records from government and commercial databases, including “prescription records from pharmacies, lab testing, and genomics records from the Department of Veterans Affairs and Indian Health Service, private insurance claims, and data from smartwatches and fitness trackers.”

Kennedy, a longtime critic of vaccination, has made the study of autism one of HHS’s primary goals. He has called autism “preventable” and claimed “he can find a cure for the condition by September.”

  • pleasegoaway@lemm.ee
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    16 hours ago

    Why is it so hard for some people to believe that there is genetic variation in the human brain?

    • sunflowercowboy@feddit.org
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      15 hours ago

      Because the genetic variation is confused and muddled by foundational things they can’t understand.

      Simple things like family structure and the importance of it. A lot of autism overdiagnoses are purely from the developmental differences; economic class, quality of life, nutrition, exposure, and obviously parents or lack there of.

      For example, simple acts like kids getting to play in the dirt exposes them to beneficial bacteria. Which I could also see laying the groundwork for gut bacteria. With how common kids do try and eat it, along with developing nations cooking with it, seems at least conceptually plausible.

      I believe in autism and am not denying its existence as my fiancée has autism.

      I am more saying that there is a huge upbringing differential that can cause kids to experience trauma. Trauma that can give the same responses. Social media enables this issue by pushing kids who don’t have access to self identify, pushing a false representation. However, it is good for kids to be trying to put the pieces together - they just need help.

      • SoleInvictus@lemmy.blahaj.zone
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        14 hours ago

        Trauma that can give the same responses.

        That’s me! Early in therapy for CPTSD, we spent some time trying to determine if I’m autistic or just have autistic tendencies due to CPTSD. Turns out it was the latter.